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Sneddon Syndrome Foundation of the U.S.

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Welcome to the Sneddon's Foundation

~ Healing through the Flow of Information ~

Sneddon's Syndrome . . . is a rare neurovascular disorder combining a bluish, net-like mottling of the skin and transient neurological episodes which are often severe. Many Sneddon's patients also suffer day-to-day battles with dizziness, severe head or eye pain, unusual muscle spasms (often in the face) and high blood pressure. For all Sneddon's patients there are worries about the possibility of stroke and memory problems that sometimes

develop into early onset dementia.

While these physical difficulties can be overwhelming, difficulties with the medical community also pose challenges.

First, most Sneddon's patients suffer from recurrent TIA's,

small strokes that are generally impossible to detect with

medical tests. As a result, Sneddon's patients are sometimes

dismissed with diagnoses of "stress" or depression, while the severity of every episode and the reality of its threat cannot, for the patient, be minimized or ignored.

Second, Sneddon's patients who've been diagnosed with the

wrong disease (often with Vasculitis) carry the double burden

of untreated illness and the potentially disabling side effects

of inappropriate medication.

Finally, Sneddon's patients with full stroke sometimes

receive delayed treatment as doctors struggle to accept the

possibility of stroke in younger patients or the need for

continued preventative measures.

Most Sneddon's patients respond well to appropriate treatment. Many can go on to lead essentially normal lives - but only if their doctors are familiar with current research on both diagnosis and management.

In response to these challenges, the U.S. Sneddon's

Foundation was formed in May 2008. Together we can

change the climate of confusion around this

difficult disease.

~ The Sneddon's Foundation: Healing through the Flow of Information ~