Welcome to the Sneddon's Foundation
~ Healing through the Flow of Infor
Sneddon's Syndrome . . .
While these physical difficulties can be overwhelming, difficulties with the medical community also pose challenges.
First, most Sneddon's patients suffer from recurrent TIA's,
small strokes that are generally impossible to detect with
medical tests. As a result, Sneddon's patients are sometimes dismissed
with diagnoses of "stress" or depression, while the severity of every episode and the reality of its threat cannot, for the patient, be minimized or ignored.
Second, Sneddon's patients who've been diagnosed with the
wrong disease (often with Vasculitis) carry the double burden
of untreated illness and the potentially disabling side effects
of inappropriate medication.
receive delayed treatment as doctors struggle to accept the
possibility of stroke in younger patients or the need for
continued preventative measures.
Most Sneddon's patients respond well to appropriate treatment. Many go on to lead essentially normal lives - but only if their doctors are familiar with current research on both diagnosis and management.
In response to these challenges, the
Foundation was formed in May 2008. Together we can
change the cli
difficult disease.
* Note*
We are currently coping with a sudden family loss and have grown behind in answering your emails and requests for information.
Please accept our apologies and know that we haven't forgotten you or the important work of the Foundation! You will hear from us shortly!
Take Good Care of Yourself –
Diane O’Leary, Ph.D.